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Please Help Yvonne Foong – A Neurofibromatosis Patient

September 21st, 2007 · 5 Comments ·
 
 

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I came to know about Yvonne Foong’s experience two years ago. I used to complaint about things which were falling apart. But now, I believe I am a lucky guy with a healthy body to enjoy working out and classes in the gym.

When Yvonne Fong was 16 years old, she was diagnosed with a rare genetic disorder called Neurofibromatosis Type 2. Many found it was hard to believe the former ballet dancer, figure skater, karate fighter and Soprano in the school choir suffered sudden health deteriorations.

Yvonne became deaf in the right ear. She then had difficulty to balance herself. She has been suffered in silence. Few times a day, her weak legs gave in suddenly without any warning. She sprained her ankles and bruising her knees. MRI scans revealed a large brain tumor that affected her hearing, and several more tumors along her spine that caused the limb weakness.

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To date, Yvonne has undergone one spine and three brain surgeries. However, the lack of experience among local doctors proved unhelpful in treating tumours caused by Neurofibromatosis Type 2. Neurofibromatosis (NF) is an illness of the nervous system. It causes benign tumors to grow in body for the entire lives.

Therefore, Yvonne has to seek medical treatment abroad. Dr. Rick A. Friedman has performed her third surgery for free.

For her fourth surgery, with her friends’ help, Yvonne has raised the cost by selling t-shirts and accessories, and by organizing various fund raising events. She has also authored a book – I’m Not Sick, Just A Bit Unwell.

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The fund raising still ongoing today. Despite having went through four surgeries, many tumors are still growing in Yvonne’s brain, spine, and along peripheral nerves. In order to monitor her health, Yvonne requires periodic MRIs, expensive doctor consultations, eye examinations, and X-Rays.

The least I can do is to highlight her plight over here. She needs to raise some money through donations to help finance her medical bills. Please help by making a kind contribution to her medical fund.

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The next time you are complaining about unfairness, I hope that you will remember what I have shared in this post.

Life is precious. Love yourself.


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5 responses so far ↓
  • ronald soo // Sep 24, 2007 at 1:24 PM

    just finished reading her book “I’m not Sick, Just a bit Unwell” last 2 days.. (eventually the book was sent to me few weeks back)

    I find that Yvonne was a very strong girl… and I would say, if everybody can offer a little help to her, i think it would be great….

    So why not drop by her online store, instead of contributing, you can get some cool gift for your friends and family too…
    Win-Win situation here…

    http://www.yvonnefoong.com/online-store/

  • Tiant Vick // Oct 29, 2008 at 11:24 PM

    My girlfriend has the same condition she lives outside the U.S. She needs surgery to remove a tumor in her neck area thats displacing the cartid artery. I don’t think the Doctors there where she lives are experienced in this type of surgery. If anyone has any suggestions on what we should do or what avenues we should look into please let me know Thank You and Yvonne you are an inspiration and my prayer are with you because I know your struggle.

  • claudia // Nov 18, 2008 at 5:50 AM

    Hi,
    I have the same “things” in my entire body I kind learned to live with them I even make my own jokes ‘My body is looks like a chocolate chip cookie ”
    But I’m concern now because the MRI past exam I have shows that I have One tumor on my spine and of course doctors want to remove it right away because they said can cause paralisis. I wonder if any body can help me. I don’t want to finish my good years in a wheel chair, but I want to treat this problem too.

  • Tiant Vick // Nov 18, 2008 at 10:32 AM

    Hi Claudia, I feel what you are going through email me at Tiantv74@yahoo.com and maybe we can share information we find.

  • Silent tears // Jul 23, 2010 at 4:01 PM

    I know how yvoone feels, cause i’m also a neurofibroma type 1 patient since birth. I’m partially blind one of my eye, i’ve multiple cafe o le spots all over me and some lumps and a uneven hip develope to my skin. Doctor told my mum that i may live up to age of 18 but i’ve exceeded for more than a decade. I don’t see my doctor for 12 yrs already cause i know that there’s no point visiting when there’s no medication. I trust in GOD, only He knows what and why he’s doing this. But in the other side, we must understand that there are more less fortune people than us. I pray to HIM please don’t create any more disable babies it’s better not to create them.

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