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Please Help Yvonne Foong – A Neurofibromatosis Patient請幫助伊馮娜萬峰-一個神經纖維瘤患者

September 21st, 2007 2007年9月21日 · · 4 Comments 4評論 · ·


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I came to know about Yvonne Foong's experience two years ago.我來了解璧萬峰的經驗兩年前。 I used to complaint about things which were falling apart.我曾經投訴的事情已破舊不堪。 But now, I believe I am a lucky guy with a healthy body to enjoy working out and classes in the gym.但現在,我相信我是一個幸運的傢伙有一個健康的身體享有制定和階層在健身房。

When Yvonne Fong was 16 years old, she was diagnosed with a rare genetic disorder called Neurofibromatosis Type 2.當伊馮娜方16歲,她被診斷出患有一種罕見的遺傳性疾病稱為神經纖維瘤病2型。 Many found it was hard to believe the former ballet dancer, figure skater, karate fighter and Soprano in the school choir suffered sudden health deteriorations.不少人認為很難相信前芭蕾舞演員,花樣滑冰,空手道戰鬥機和女高音在學校合唱團遭受突如其來的健康惡化。

Yvonne became deaf in the right ear.伊馮娜成為聾子的右耳。 She then had difficulty to balance herself.然後,她很難平衡自己。 She has been suffered in silence.她一直沉默地承受。 Few times a day, her weak legs gave in suddenly without any warning.一天幾次,她柔弱的腿突然了,在沒有任何警告。 She sprained her ankles and bruising her knees.她扭傷了腳踝,她的膝蓋挫傷。 MRI scans revealed a large brain tumor that affected her hearing, and several more tumors along her spine that caused the limb weakness.磁共振掃描顯示腦部大腫瘤,影響了她的聽覺,還有幾個她的脊椎腫瘤以及造成的四肢無力。

伊馮娜-鋒和-塞吉-學院friends.jpg

To date, Yvonne has undergone one spine and three brain surgeries.迄今為止,伊馮娜經歷了一個脊椎和三次腦部手術。 However, the lack of experience among local doctors proved unhelpful in treating tumours caused by Neurofibromatosis Type 2.然而,缺乏經驗證明,在當地醫生不利於治療腫瘤引起的神經纖維瘤病2型。 Neurofibromatosis (NF) is an illness of the nervous system.多發性神經纖維瘤(NF)是一種疾病的神經系統。 It causes benign tumors to grow in body for the entire lives.它會導致良性腫瘤在身體成長的整個生活。

Therefore, Yvonne has to seek medical treatment abroad.因此,伊馮娜已經到國外就醫。 Dr. Rick A. Friedman has performed her third surgery for free.里克弗里德曼博士答:執行了她第三次手術是免費的。

For her fourth surgery, with her friends' help, Yvonne has raised the cost by selling t-shirts and accessories, and by organizing various fund raising events.對於她的第四次手術,她的朋友的幫助下,伊馮娜提高了成本銷售T恤衫及配件,並通過舉辦各種籌款活動。 She has also authored a book – I'm Not Sick, Just A Bit Unwell .她還創作了一本書-我沒有病,只是有點不舒服

伊馮娜-鋒,book.jpg

The fund raising still ongoing today.籌款今天仍在進行。 Despite having went through four surgeries, many tumors are still growing in Yvonne's brain, spine, and along peripheral nerves.儘管已經經歷了4次刀,許多腫瘤仍增長璧的大腦,脊柱,沿周圍神經。 In order to monitor her health, Yvonne requires periodic MRIs, expensive doctor consultations, eye examinations, and X-Rays.為了監測她的健康,必須定期接受核磁共振成像伊馮娜,昂貴的醫生諮詢,眼科檢查和X射線。

The least I can do is to highlight her plight over here. She needs to raise some money through donations to help finance her medical bills. Please help by making a kind contribution to her至少我可以做的是突出她在這裡的困境。 她需要籌集一些資金通過捐款以資助她的醫療費。請協助作出自己的貢獻實物 medical fund醫療基金 .

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The next time you are complaining about unfairness, I hope that you will remember what I have shared in this post.下一次當你抱怨不公平的,我希望你會記得我都分享到這個職位。

Life is precious. 生命是寶貴的。 Love yourself. 愛自己。

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4 responses so far ↓ 4答复迄今↓
  • ronald soo 羅納德洙 // / / Sep 24, 2007 at 1:24 PM 2007年9月24日在下午1點24分

    just finished reading her book “I'm not Sick, Just a bit Unwell” last 2 days..剛剛讀完她的書“我沒有病,只是有點不舒服”最近2天.. (eventually the book was sent to me few weeks back) (最後這本書給我幾個星期前)

    I find that Yvonne was a very strong girl… and I would say, if everybody can offer a little help to her, i think it would be great….我發現,伊馮娜是一個很強的女孩...我說,如果人人都可以提供一點幫助她,我想這是偉大的...。

    So why not drop by her online store, instead of contributing, you can get some cool gift for your friends and family too…那麼為什麼不下降她在線商店,而不是貢獻,你可以得到一些很酷的禮物你的朋友和家人太多...
    Win-Win situation here…雙贏這裡...

    http://www.yvonnefoong.com/online-store/ http://www.yvonnefoong.com/online-store/

  • Tiant Vick // Tiant維克 / / Oct 29, 2008 at 11:24 PM 2008年10月29日在11:24 pm

    My girlfriend has the same condition she lives outside the US She needs surgery to remove a tumor in her neck area thats displacing the cartid artery.我的女朋友有相同的條件下,她在美國以外的生活,她需要進行手術移除腫瘤在她的脖子地區多數民眾贊成取代的頸動脈血管。 I don't think the Doctors there where she lives are experienced in this type of surgery.我不認為那裡的醫生在她的生命經歷了這種類型的手術。 If anyone has any suggestions on what we should do or what avenues we should look into please let me know Thank You and Yvonne you are an inspiration and my prayer are with you because I know your struggle.如果任何人有任何建議,對我們應該做什麼渠道,我們應該研究請告訴我謝謝你和Yvonne你是一個靈感,我的祈禱與你,因為我知道你們的鬥爭。

  • claudia // 克勞迪婭 / / Nov 18, 2008 at 5:50 AM 2008年11月18日在日上午05:50

    Hi,嗨,
    I have the same “things” in my entire body I kind learned to live with them I even make my own jokes 'My body is looks like a chocolate chip cookie ”我也有同樣的“東西”在我的整個身體我有點學會和他們一起生活,我什至有自己的笑話,'我的身體看起來像巧克力餅乾“
    But I'm concern now because the MRI past exam I have shows that I have One tumor on my spine and of course doctors want to remove it right away because they said can cause paralisis.但是我現在關注的問題,因為過去的核磁共振檢查顯示,我有一個腫瘤,我對我的脊椎,當然醫生要刪除的權利,因為他們說可能導致paralisis。 I wonder if any body can help me.我想知道的任何機構能幫助我。 I don't want to finish my good years in a wheel chair, but I want to treat this problem too.我不希望完成我的好年景坐輪椅,但我想處理這個問題了。

  • Tiant Vick // Tiant維克 / / Nov 18, 2008 at 10:32 AM 2008年11月18日在上午10時32分

    Hi Claudia, I feel what you are going through email me at您好克勞迪亞,我覺得你的經歷給我發電子郵件的 Tiantv74@yahoo.com Tiantv74@yahoo.com and maybe we can share information we find. ,也許我們可以分享信息,我們發現。

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Search terms for this post: 搜索這個崗位條件:
Yvonne Foong 伊馮娜永豐 - - neurofibromatosis patients 多發性神經纖維瘤患者 - - neurofibromatosis surgery cost 神經纖維瘤手術費用 - - neurofibromatosis en español 神經纖維瘤中文西班牙語 - - neurofibromatosis t shirts 神經纖維瘤T恤衫 - - Neurofibromatosis shirts 神經纖維瘤病襯衫 - - what do people with neurofibromatosis weigh? 什麼人與神經纖維瘤病多重? - - i\'m not sick just a bit unwell i \'米沒有生病只是有點不舒服 - - neurofibromatosis doctors in california 神經纖維瘤在加利福尼亞州的醫生 - - neurofibromatosis patient 神經纖維瘤患者 - - neurofibromatosis 神經纖維瘤 - - neurofibromatosis doctors 神經纖維瘤醫生 - - yvonnefoong yvonnefoong - - What type of doctor treats neurofibroma? 什麼類型的神經纖維瘤醫生診治? - - neurofibromatosis treatment costs 神經纖維瘤的治療費用 - - NEUROFIBROMATOSIS ????? 神經纖維瘤????? ???? ???? - - yvonne fong blog 伊馮娜芳博客 - - weak leg and neurofibromatosis 弱腿和神經纖維瘤 - - how to treat neurofibromatosis 如何治療多發性神經纖維瘤 - - neurofibromatosis help 神經纖維瘤的幫助 - - www.yvonnefoong.com www.yvonnefoong.com - - what doctor treats neurofibromatosis 什麼醫生診治神經纖維瘤 - - what type of doctor treats neurofibromatoses 什麼類型的醫生診治neurofibromatoses - - neurofibromatosis en espanol 神經纖維瘤中文西班牙語 - - neurofibromatosis and brusing 神經纖維瘤和brusing - - yvonne oversetter 伊馮娜oversetter - - neurofibromatosis treatment abroad 國外治療神經纖維瘤 - - Yvonne Foong,i am not sicked 伊馮娜永豐,我不是sicked - - cost of neurofibromatosis surgeries 神經纖維瘤手術費用 - - yvonne fong 伊馮娜芳 - - cost of neurofibromatosis treatment 神經纖維瘤的治療費用 - - type 2 neurofibromatosis 2型神經纖維瘤 - - neurofibromatosis doctor in California 神經纖維瘤在加利福尼亞州的醫生 - - What are the costs for treating neurofibromatosis? 什麼是神經纖維瘤治療的費用? - - what are the cost of treating neurofibromatosis 什麼是神經纖維瘤的治療費用 - - neurofibromatosis california 神經纖維瘤加利福尼亞 - - I'm Not Sick, Just A Bit Unwell 我沒有病,只是有點不舒服 - - pubic hair 陰毛 - - tumor in my spine 在我的脊椎腫瘤 - - what kind of dr treats neurofibromatosis 什麼樣的醫生對待神經纖維瘤病 - - neurofibromatosis + patients 多發性神經纖維瘤病人+ - - I'm not sick, just a bit unwell foong 我不是生病,只是有點不舒服鋒 - - neurofibromatosis peripherial cost 神經纖維瘤外周血成本 - - yyvone foong neurofibromatosis yyvone鋒神經纖維瘤 - - What is the cost for treating neurofibromatosis 成本是什麼治療神經纖維瘤 - - Neurofibromatosis polish 神經纖維瘤病波蘭 - - cost of treating neurofibromatosis 神經纖維瘤的治療費用 - - neurofibromatosis patients with 多發性神經纖維瘤患者 - - money cost for Neurofibromatosis 資金成本神經纖維瘤 - - yvonne foong eye doctor 璧鋒眼科醫生 - -